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In a recent article by CNN, the challenges faced by individuals living with narcolepsy were highlighted, shedding light on a condition that affects approximately one in 2,000 people in the United States and around 3 million globally. Jennifer Mundt, an assistant professor at Northwestern University Fein School of Medicine in Chicago, emphasized the severity of the disorder, stating, “There has been a lot of stigma surrounding narcolepsy… It’s not a joke; it’s a very serious condition”.
The article features the experiences of individuals like Horsnell, who has battled narcolepsy since age 12. He described the long journey to diagnosis, which included consultations with multiple healthcare professionals before finally seeing a sleep specialist in 2007. The Narcolepsy Network estimates that only about 25% of those affected receive a proper diagnosis and treatment, highlighting significant gaps in awareness and healthcare access.
Mundt explained that narcolepsy often includes symptoms such as excessive daytime sleepiness and cataplexy, which can severely impact daily life. The disorder can lead to difficulties in socializing, maintaining employment, and even driving.
Moreover, nightmares and hallucinations are common among those with narcolepsy. Mundt conducted a pilot study utilizing cognitive behavioral sleep techniques to manage these disturbing symptoms.
The ongoing stigma surrounding narcolepsy not only complicates diagnosis but also affects how individuals are perceived socially.
For more information on this topic, you can read the full article on CNN’s website.
Sources:
[1] https://www.cnn.com/2024/11/01/health/narcolepsy-wellness/index.html
[2] https://www.mayoclinic.org/diseases-conditions/narcolepsy/symptoms-causes/syc-20375497
[3] https://edition.cnn.com/2023/12/21/health/sleep-mental-health-wellness/index.html
[4] https://www.cnn.com/2024/06/08/health/violent-dreams-parkinsons-dementia-wellness/index.html
[5] https://www.nhlbi.nih.gov/health/narcolepsy
[6] https://www.cnn.com/2017/10/24/health/sleep-research-narcolepsy-partner/index.html
[7] https://www.cnn.com/2017/04/27/health/narcolepsy-marathon-runner-julie-flygare/index.html
[8] https://www.cnn.com/2015/09/25/health/narcolepsy-homer-simpson/index.html
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